Conflicting appointments

the following is a lot of stress for nothing. i woke up on fire at 5:45 am to check MyHealth Portal, only to be dismayed by a conflicting mammogram with my existing medical oncology appointment. A social worker at Monashee called today and she’s checking with my NP whether this is needed. I’ve been poked and prodded enough to give up the life saving mammogram in exchange for a repeat life saving PET scan.

I am getting appointments set up through devices at KBRH without people talking to me. MyHealth Portal isn’t coherent. It is confuse the F@&K out of the patient central.

These appointments are in conflict with existing oncology appointments out of Kelowna.

It’s a day trip distance to Kelowna, but I don’t want an unnecessary mammogram in the AM, to be followed by a 4 hour drive and an appointment with a medical oncologist, which is more pertinent to me surviving the cancer we know I have.

These pursuits are too expensive.  Travel for care. I wouldn’t bother moving to the West Kootenay region unless you know you’re perfectly healthy and have every resource in the world available to you. Otherwise, it’s travel when something goes wrong, and not the fun kind.

KBRH is a pointless hospital overall. I imagine their doors will close one day, or just serve wealthy Americans who want their kids arm set for cheaper than they can get that care in Colville. I definitely don’t need a mammogram over another PET scan.

That’s right. If you guessed it, my PET was a failure and I need it re-done. Kelowna didn’t call me, they left it up to my nurse practitioner to relay that message. It’s an epic game of tag you’re it… no one actually cares if I live and I’m struggling with that myself right now.

I’m not in the proper loop, everything is implied, nothing specific. I don’t know what is happening.  I just know it gives me so much anxiety that I won’t sleep all weekend now, when I just started to be able to sleep again too.

People die just from this level of stress alone. It would be funny if I didn’t think it was medical malpractice.

What I did about this!

I couldn’t get in touch with Monashee Clinic, because I know it’s day off time for them. Instead I went straight to the source, BC Cancer in Kelowna. I have a case number there already. I’m much more comfortable with that then other numbers, but dang, just another one to memorize by heart.

My social work out of there will be prioritized now. I’m upset they don’t all understand to make explicit what my priorities should be. It would be nice if I could enjoy some of this time off.